About Helene
Sometimes, our dreams are realized in ways that exceed our expectations.
When I dreamed of being a writer, I imagined sharing my voice with others. I never thought it would also lead to becoming a national advocate for patients and families. I’ve been a published writer and journalist for over twenty years with a broad portfolio. Since 2005, I've focused on writing about and working to help families in crisis. I do this because my own family survived years of our son’s medical crises and we were lucky enough to have a happy resolution. I'm currently seeking a library agent for my personal narrative book (working title CATCH ME WHEN I STUMBLE). Check back for updates. I'll let you know when it's published.
Most recently, I'm as proud of my new column PATIENT NO MORE, as I have been of Dx IQ. Both have helped patients apply the latest medical diagnostic news to their own care since 2018. (To subscribe, visit the link or click on CONTACT.
I’m thrilled to be a member of the Steering Committee of Patient-Partnered Diagnostic Center of Excellence and a Champion for Patients for Patient Safety US. Both are working effectively at the national level to reduce patient harms.
I’m a member of the American Society of Journalists and Authors (ASJA) and of the Association of Health Care Journalists (AHCJ). I proudly serve on the board of Pen Parentis, a small nonprofit with global membership that helps writers stay on creative track after they start a family.
I also served on the Board of Directors of The Society to Improve Diagnosis in Medicine (SIDM) until it closed in the summer of 2024. SIDM was a worldwide organization focused on solving the most common source of medical errors, diagnostic error (most commonly referred to as misdiagnosis).
The update on my son: he is healthy, in love, married and working in the field for which he studied. I was only responsible for one of those but I revel in all three. I live in New York City with my husband who is the love of my life, very patie.
About Helene
Bio
Sometimes, our dreams are realized in ways that exceed our expectations.
When I dreamed of being a writer, I imagined sharing my voice with others. I never thought it would also lead to becoming a national advocate for patients and families. I’ve been a published writer and journalist for over twenty years with a broad portfolio. Since 2005, I've focused on writing about and working to help families in crisis. I do this because my own family survived years of our son’s medical crises and we were lucky enough to have a happy resolution. I'm currently seeking a literary agent for my personal narrative book (working title CATCH ME WHEN I STUMBLE). Check back for updates. I'll let you know when it's published.
Most recently, I'm as proud of my new column PATIENT NO MORE, as I have been of Dx IQ. Both help patients apply the latest medical diagnostic news to their own care. (To subscribe, visit the link or click on CONTACT.
I’m thrilled to be a member of the Steering Committee of Patient-Partnered Diagnostic Center of Excellence and a Champion for Patients for Patient Safety US. Both are working effectively at the national level to reduce patient harms.
I’m a member of the American Society of Journalists and Authors (ASJA) and of the Association of Health Care Journalists (AHCJ). I proudly serve on the board of Pen Parentis, a small nonprofit with global membership that helps writers stay on creative track after they start a family.
I also served on the Board of Directors of The Society to Improve Diagnosis in Medicine (SIDM) until it closed in the summer of 2024. SIDM was a worldwide organization focused on solving the most common source of medical errors, diagnostic error (most commonly referred to as misdiagnosis).
The update on my son: he is healthy, in love, married and working in the field for which he studied. I was only responsible for one of those but I revel in all three. I live in the New York metro area with my husband who is the love of my life, very patient, and supportive.
I hope you’ll find this website helpful and informative. Please let me know what you’re thinking about, read and share my posts and articles with friends and family, and let’s all try to help one another to find answers or peace.