About Helene

When I dreamed of being a writer, I never thought it would lead to becoming a national advocate for patients and families. I’ve been a published writer and journalist for over twenty years but I’ve focused on writing about, and trying to help, families in crisis since 2005. I do this because my own family has lived through years of our son’s medical crises and we were lucky enough to have a happy resolution.


I now proudly serve on the Boards of Directors of Pen Parentis and Brightpoint Health. Pen Parentis is a small nonprofit with global membership that helps writers stay on creative track after they start a family. Brightpoint is a nonprofit provider of integrated medical and mental health care, and social support services to people challenged by health disparities in New York City. It is now part of the HRHCare family which operates in the greater New York area.

I’ve been appointed to the Patient Engagement Committee for the Society to Improve Diagnosis in Medicine (SIDM), a worldwide organization focused on solving the most common source of medical errors. My column, Dx IQ, has been a regular SIDM publication since 2018.


And I’m thrilled to sit on the advisory panels for three major national studies on diagnostic error as their patient advocate expert. I’m a member of the American Society of Journalists and Authors (ASJA) and of the Association of Health Care Journalists (AHCJ).

The update on my son: he is healthy, in love, and working in the field for which he studied. I was only responsible for one of those but I revel in all three. I live in New York City with my husband who is the love of my life, very patient, and supportive.


I hope you’ll find this website helpful and informative. Please let me know what you’re thinking about, read and share my posts and articles with friends and family, and let’s all try to help one another to find answers or peace. 


Helene was a guest speaker at our company as part of the Speaker Series initiative we host for our employees each month. We are a mission-oriented company focused on eliminating diagnostic errors. Our goal with Helene's talk was to inform and inspire our team. Helene hit the perfect tone; she shared a very personal story, she educated our team about misdiagnosis in general, and she was very approachable when our employees had questions. In preparation for the talk, Helene was responsive, well prepared, and just a pleasure to work with overall. I highly recommend Helene as a speaker!

Veronica Palma, SPHR

Senior Manager at Imagen Technologies

​I have met and worked with an awful lot of people in my 25 years in the advertising business, but precious few with the intellect, incisiveness and emotional intelligence of Helene. I owe so much to her thinking on the subject of growth, and frankly human nature in general. I recommend Helene enthusiastically.

Kevin Allen

Founder at re:kap Ltd

Helene is committed and fully engaged in every endeavor she undertakes. She has a broad knowledge base and easily assimilates new information. Helene is a proficient research analyst and skilled writer who can successfully manage multiple tasks simultaneously. Her greatest strength is interpersonal relations, team building and generating consensus, which is key to moving any project forward. 

Eva Frazer, MD

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