Sometimes, our dreams are realized in ways that exceed our expectations.
When I dreamed of being a writer, I imagined sharing my voice with others. I never thought it would also lead to becoming a national advocate for patients and families. I’ve been a published writer and journalist for over twenty years with a broad portfolio. Since 2005, I've focused on writing about and working to help families in crisis. I do this because my own family survived years of our son’s medical crises and we were lucky enough to have a happy resolution.
Most recently, I'm proud of my column, Dx IQ. It's been helping patients apply the latest medical diagnostic news to their own care since 2018.
I proudly serve on the Boards of Directors of Pen Parentis and Brightpoint Health. Pen Parentis is a small nonprofit with global membership that helps writers stay on creative track after they start a family. Brightpoint is a nonprofit provider of integrated medical and mental health care, and social support services to people challenged by health disparities in New York City. It's now part of the SunRiver Health Care family which operates in the greater New York area.
I also serve on the Patient Engagement Committee for the Society to Improve Diagnosis in Medicine (SIDM), a worldwide organization focused on solving the most common source of medical errors.
And I’m thrilled to sit on the advisory panels for three major national studies on diagnostic error as their patient advocate expert. I’m a member of the American Society of Journalists and Authors (ASJA) and of the Association of Health Care Journalists (AHCJ).
The update on my son: he is healthy, in love, and working in the field for which he studied. I was only responsible for one of those but I revel in all three. I live in New York City with my husband who is the love of my life, very patient, and supportive.
I hope you’ll find this website helpful and informative. Please let me know what you’re thinking about, read and share my posts and articles with friends and family, and let’s all try to help one another to find answers or peace.
Helene was a guest speaker at our company as part of the Speaker Series initiative we host for our employees each month. We are a mission-oriented company focused on eliminating diagnostic errors. Our goal with Helene's talk was to inform and inspire our team. Helene hit the perfect tone; she shared a very personal story, she educated our team about misdiagnosis in general, and she was very approachable when our employees had questions. In preparation for the talk, Helene was responsive, well prepared, and just a pleasure to work with overall. I highly recommend Helene as a speaker!
Veronica Palma, SPHR
Senior Manager at Imagen Technologies
I have met and worked with an awful lot of people in my 25 years in the advertising business, but precious few with the intellect, incisiveness and emotional intelligence of Helene. I owe so much to her thinking on the subject of growth, and frankly human nature in general. I recommend Helene enthusiastically.
Founder at re:kap Ltd
Helene is committed and fully engaged in every endeavor she undertakes. She has a broad knowledge base and easily assimilates new information. Helene is a proficient research analyst and skilled writer who can successfully manage multiple tasks simultaneously. Her greatest strength is interpersonal relations, team building and generating consensus, which is key to moving any project forward.
Eva Frazer, MD
Helene was a great speaker – interesting, informative, attuned to the audience. I thought the pace was great, the interest level was high, and I think it really woke people up to the issues... The program raised interesting issues and questions that all parents should be aware of. Other schools would definitely benefit from having Helene come in and
speak to parents.
Principal Data Revelations
Many thanks for inspiring families like mine to be change agents in our states when confronted with misdiagnosis, medical errors and harm; tough things for any family... I particularly appreciated that you were able to... give me some actionable ideas.
Mother in NC
Helene Epstein helped our family identify a potential diagnosis for our daughter who suffered from a chronic, debilitating and undiagnosed condition. Through her contacts and research, she was able to identify a rare disease for us to explore - one that is new even to the CDC. My daughter's physician is grateful that he now can change her treatment and it is working. We are forever grateful to Helene.
Fundraiser in St. Louis
Helene Epstein’s contributions came in many forms. I was very impressed... by her thorough preparation for every meeting. Helene's comments were well thought out, and I cannot remember a meeting where she did not contribute. Her willingness to take on special projects or committees, either as the chairperson or member, was very commendable. Any board would be fortunate to have her on their roster.
President and CEO, The Muny
Helene is a professional from the start of an assignment to the end. And pleasant to work with throughout the process. Her writing requires minimal edits. I would recommend her as someone that would tackle most any assignment adeptly while meeting deadline.
Helene is a delight to work with--a consummate pro who does her homework when writing features for me, able to dig up sources for even the most obscure topics.
I've heard so much about you that it was a pleasure to meet the legend! I found your seminar informative and entertaining...Thanks for an eye-opening session.
1 / 1