About Helene
Sometimes, our dreams are realized in ways that exceed our expectations.
When I dreamed of being a writer, I imagined sharing my voice with others. I never thought it would also lead to becoming a national advocate for patients and families. I’ve been a published writer and journalist for over twenty years with a broad portfolio. Since 2005, I've focused on writing about and working to help families in crisis. I do this because my own family survived years of our son’s medical crises and we were lucky enough to have a happy resolution.
Most recently, I'm proud of my column, Dx IQ. It's been helping patients apply the latest medical diagnostic news to their own care since 2018.
I proudly serve on the Boards of Directors of Pen Parentis and The Society to Improve Diagnosis in Medicine (SIDM). Pen Parentis is a small nonprofit with global membership that helps writers stay on creative track after they start a family. SIDM is a worldwide organization focused on solving the most common source of medical errors, diagnostic error (most commonly referred to as misdiagnosis).
I also serve on the Patient Engagement Committee for SIDM.
And I’m thrilled to sit on the advisory panels for three major national patient safety projects focused on diagnostic error as their patient advocate expert. I’m a member of the American Society of Journalists and Authors (ASJA) and of the Association of Health Care Journalists (AHCJ).
The update on my son: he is healthy, in love, married and working in the field for which he studied. I was only responsible for one of those but I revel in all three. I live in New York City with my husband who is the love of my life, very patient, and supportive.
I hope you’ll find this website helpful and informative. Please let me know what you’re thinking about, read and share my posts and articles with friends and family, and let’s all try to help one another to find answers or peace.
About Helene
Bio
Sometimes, our dreams are realized in ways that exceed our expectations.
When I dreamt of being a writer, I imagined sharing my voice with others. I never thought it would also lead to becoming a national advocate for patients and families. I’ve been a published writer and journalist for over twenty years with a broad portfolio. Since 2005, I've focused on writing about –– and working to help –– families in crisis. I do this because my own family survived years of our son’s medical crises and we were lucky enough to have a happy resolution. My personal narrative book (working title Catch Me When I Stumble) is in editing. Check back for updates. I'll let you know when it will be published.
Most recently, I'm proud of my column, Dx IQ. It's been helping patients apply the latest medical diagnostic news to their own care since 2018. My latest articles are published on my Substack Patient No More. You can subscribe here, or there, to read them in your inbox.
I proudly serve on the Boards of Directors of Pen Parentis and The Society to Improve Diagnosis in Medicine (SIDM). Pen Parentis is a small nonprofit with global membership that helps writers stay on creative track after they start a family. SIDM is a worldwide organization focused on solving the most common source of medical errors, diagnostic errors, commonly referred to as misdiagnosis.I also serve on the Patient Engagement Committee for SIDM.
And I’m thrilled to sit on the advisory panels for several major national projects on patient safety and diagnostic error to represent the patient experience. I’m a member of the American Society of Journalists and Authors (ASJA) and of the Association of Health Care Journalists (AHCJ).
The update on my son: he is healthy, married to the love of his life and working in the field for which he studied. I was only responsible for one of those but I revel in all three. I live in the New York metro area with my husband who is the love of my life, very patient, and supportive.
I hope you’ll find this website helpful and informative. Please let me know what you’re thinking about, read and share my posts and articles with friends and family, and let’s all try to help one another find answers or peace.